Hereditary Hemorrhagic Telangiectasia Foundation International, Inc. (HTT)
The Hereditary Hemorrhagic Telangiectasia Foundation International, Inc (HHT).is the only non-profit organization dedicated to finding a cure, the best available treatment, and education to the medical community and to those with Osler-Weber-Rendu Syndrome. The Foundation currently has over 2000 paid members and has been contacted by over 7000 individuals since our founding in 1991.
The foundation's mission is to find a cure for HHT while saving the lives and improving the well-being of individuals and families affected by HHT.
To achieve this mission, the HHT Foundation will :
- Fund research to find better treatments and a cure.
- Educate families and physicians about HHT so that awareness of crucial diagnosis and available treatments prevents needless disability and death.
- Provide linkages among people affected by HHT.
- Collaborate with multidisciplinary HHT Treatment Centers worldwide while advocating for patient access to these Centers.
- Advocate for and support those with HHT while increasing public, private, and governmental awareness of the disorder.
- Engage the scientific and medical community so that talented individuals dedicate efforts toward advances in HHT screening, diagnosis, treatment, and research.
For more information, please contact:
Hereditary Hemorrhagic Telangiectasia Foundation International, Inc.
P.O. Box 329
Monkton, MD 21111
Phone: 1–800–448–6389
Fax: 410–357–9932
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