Hemophelia Federation of America
Conceived during a grassroots movement within the bleeding disorders community over a decade ago, the Hemophilia Federation of America (HFA) was incorporated as a nonprofit 501(c)3 corporation with a mission and vision to serve the needs of the hemophilia community's patients and families. HFA’s specific focus is to continuously serve its constituents by filling any gap in existing services and complementing and collaborating with other organizations that serve the community. HFA’s membership consists of member organizations and a diverse group of independent members from all facets of society who share ideals and goals consistent with HFA’s mission and vision.
HFA, in support of its community, is a vigilant monitor of the actions of government, the medical community and the pharmaceutical industry as they affect persons with bleeding disorders and their families. HFA is always ready for immediate response and able to take appropriate action when any threat to the community exists.
To that end, HFA serves as an advocate for blood and blood product safety, choice of treatment as well as choice of health professional and product provider for the consumer. HFA maintains a strong presence in our nation’s capital through its governmental and legislative action program tracking issues pertinent to the community. The HFA Legislative Action Center website allows individuals, organizations and industry to monitor federal, state and local issues important to the hemophilia world and are able to have immediate input and contact with government officials and entities.
Improving the quality of life for patients and families is a major goal of HFA. It administers programs that address the needs of patients and their families, especially the complex and multifaceted myriad of problems that exist when living with a bleeding disorder. HFA’s programs include the Helping Hands, Dads in Action, Teen Connection, Focus on the Feminine, Blood Brotherhood, New Families and Educational Scholarship programs.
HFA’s work and its membership are showcased each year at the HFA Symposium held at various locations throughout the country. Symposium is a national educational meeting where patients and families come together and are presented with an opportunity for information, networking and camaraderie among their peers in a relaxed and comfortable setting. Symposium provides unique programs where members of the bleeding disorders community gather in order to learn, assist and support one another at an event designed by the community and for the community.
For more information, please contact:
Hemophelia Federation of America
1405 W. Pinhook Road, Suite 101
Lafayette, LA 70503
Phone: 1–800–230–9797
Fax: 337–261–1787
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